I am NOT smarter than this fifth grader...

Heart Update

2008-02-21T12:03:00.003-05:00

Yesterday we went to the Cardiac Spacialist and had an echo done, which took some time because Becca's heart has repositioned itself more on the left side since her left lung has been removed. It showed that her vsd is still tiny but that she has an aortic valve leak. They seemed concerned with Pulmonary hypertension which I was told that will occurr but they could not say "when". They said when that does occur it will back up blood into her right ventricle of her heart which there was no sign of yet. Her heart looks stable at this point. We go to see the Pulmonary Specialist next month so we will know more then. Hypertension will happen due to the fact that we are expecting her one lung to do the work of two lungs. Just another bump in the long winding road.

Wow ~ Giants took it!!

2008-02-06T08:29:00.000-05:00

Rebecca and I went to Tampa to watch the Superbowl and could not believe the Giants took it. It was a great game, Manning really brought it in the end. Still my heart wept for the Pats, for they won every game this season except the one that "counted" ~ go figure. We are back home and Becca is back to school, and so am I. Having trouble concentrating on my studies for the past couple weeks so today I am getting ready to cram for that exam and start that essay. Rebecca is doing really well at her new school. It is so much easier than the other. She is not acting out about doing her homework, and there isn't as much stress and pressure on her. She has been much happier since starting this school. We are getting ready to see her cardiac specialists in a couple weeks...and dentist...so the less stress the better right now.

New School

2008-01-24T08:47:00.000-05:00

Well, as I had feared the teachers called me back to let me know that all had decided that relocating Rebecca to a different school better equiped to teach her is the solution. Integrating her into a class of thirty children was just to much for her to handle. She will start her new school on Monday. She will be in a self-contained class of 15 kids with different disibilities. I will go see the classroom tomorrow. She is taking it better than I had expected. She is excited actually. On last Friday we went to her GI Specialist and got a recipe to start in her diet to help move things along better :) We went to Tampa over the weekend to see friends and watch the Patriots win and head to the Superbowl!!!! GO PATS ~ 18-0. Making NFL history.

school needing to make changes...

2008-01-14T11:34:00.000-05:00

Well, I still haven't thawed out from my trip to Boston and this cooler weather we are getting here doesn't help. Rebecca wore her winter coat to school today. The teachers are concerned that Becca is falling behind in her academics in her new school setting (integrated class) so they called a meeting to see what more they could do. After the meeting they felt they had come up with some good ideas, but still felt there was more they could do. They have called in some ESE teachers from a different school to come and observe her in her class setting. After the observation they will go over and review everything with these other teachers. I am so scared that they will decide to change Rebecca's school. This school is not that equiped to teach a child like Rebecca. They do not have segregated classes, etc... I really hope they can keep her in this school, but if not I pray Rebecca will be ok being switched to yet another school this year. :( Meeting is tomorrow I will post more then.

A Great Mom Weekend

2008-01-07T16:00:00.000-05:00

It is Monday and I have caught up on my rest from a wonderful weekend trip back home to Boston. I got to see my Uncle & Aunt, my cousins, and a Great Aunt, and four of my closest and dearest friends. Two days wasn't enough time and I hope to get back there soon with Becca and spend some more time. There is some definite Patriot fever going on up there. I miss it back home. So today I am helping Becca with a science project which her thesis is due in school tomorrow. "Which cheese molds the fastest" and it is a smelly project. It has been a great school vacation for her. She is a bit bored without her friends to play with, but she will meet new friends up here soon enough. It has been cold here in Florida, but today it is finally warming back up, I think I might be able to lay in the sun this week and catch some rays. You know when you meet someone and you have a feeling that that person will be in your life for a very long time? Well I have been in contact with someone has that strong connection with me, and I have a feeling once we meet, we will at the very least be friends for life. That is a great gift. Thanks to everyone back home for a wonderful weekend, it was a great way for me to start the new year!!

To Do List!!

2008-01-03T10:40:00.000-05:00

Happy New Year!!!
Today I am busy getting ready to fly off to Boston. I have a million things to do. Inever got around to uploading pics from our holiday will have to do that when I return. School vacation has been a relaxing time for me and the lil bug. I am working on a science project for her school with her. "Which cheese molds the fastest" Should be quite interesting as well as smelly. Back to school next week for her. My studies are going very well and waiting to start my essay. I can't decide which topic to choose. Signing off for now, next week will be busier for her yearly sppts. will be starting.

All Wrapped Up...

2007-12-22T22:36:00.000-05:00

Today was a day filled with running around and getting all the last minute Christmas things done. Buying the roast, and the pies, and the candy for the stocking. I was out shopping in the holiday madness from 11am till 4:30pm. After putting everything away and cooking dinner it was time to wrap everything and start displaying it under the tree. I didn't get to finish everything but we always like to save some things from Santa :) There is the lil bug sitting in front of the Christmas tree after decorated it a couple weeks ago. Can't wait till we take pictures on Christmas morning. That is all I have for today. My dinner came out superb!! And it is late so I am just getting to eat and then off to bed. I am sure tomorrow will be a similar day of last minute run arounds.

A day of scheduling

2007-12-20T20:53:00.000-05:00

Well having to deal with day to day things, waking up to get Becca off to school, feeding the dog, and studying is a lot for me these days. Adding the scheduling I have spent doing these past few days leaves not much room for anything more than sleep at the end of the day. Planning a short trip home, spending hours online procing airflights can really give you a headache. But now that it is done, booked and confirmed I can enjoy the anxiety building of seeing old friends and family again. Also spent hours on the phone scheduling Dr.'s appts. for Becca. She is due, or overdue to see all of those wonderful Specialists. Cardiac, Pulmonary, G.I., Dentist, Genetics, and if that isn't enough...having to grill the internet for an hour or two trying to find a new Primary Pediatrician in our new area we have moved to. Was no sooner finished with all this, and here comes Becca home from school. Walked the dog to the bus stop to meet her, and Domino proudly walks us home carrying her book bag the whole way. Getting in the door, making dinner, cleaning up, answering last minute emails, and lets not forget that phone that keeps on ringing.....the only blessing tonight is that there is no homework for tomorrow she has her Holiday party to celebrate the last day of school before Christmas. Christmas is another thing, is anyone ever done in time for Christmas? After no homework was established, we walked Domino to the store to buy treats and soda for the school holiday party tomorrow. It was nice, not to cold tonight as it has been. It was good to go out and walk in the fresh air, clear my head. The bed is now calling me...